Father launches the initiative to find the remedy against rare cancer of his son’s brain

The St. Jude children’s hospital estimates that around 400,000 children worldwide will be diagnosed with cancer this year. In the United States, research and treatments have contributed to increasing survival rates. 80% of children live five or more with treatment, but a lot of work is done to improve this statistic and find remedies for rare forms of cancer.

“Children with brain tumors have been left behind. Because the treatments are very old, they are 80s, believe it or not,” said Fernando Goldsztein.

Fernando’s son Frederico was diagnosed with a brain tumor at the age of nine. Medulloblastoma is the most common brain tumor in children, but it is still rare. Only five in one million children are diagnosed with the disease each year, which has made it difficult to find new research.

“Unfortunately, he relapsed,” said Fernando. “The doctors told me that there was nothing to do to save my son, that I should go home and spend time with him.”

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Fernando Goldsztein launched the Médulloblastome initiative after his son, Frederico, was diagnosed with rare brain cancer. (Graciousness of Fernando Goldsztein)

The five -year survival rate for patients with Medulloblastoma is more than 80%. But if the disease returns, the five -year survival rate falls within 40%.

“When I received this new devastator five years ago, after two weeks, I somehow recovered, you never recover, right? But I have somehow recovered and I said:” I have to do something, I will do something “,” said Fernando.

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Fernando has been responsible for finding a remedy for Frederico, who is still faced with a recurring medulloblastoma at the age of 18. Two years after the return of Frederico cancer, Fernando launched the Medulloblastoma initiative, or MBI, alongside Dr. Roger Packer, one of the main researchers in the Médulloblastoma in the world at the National Hospital of Washington, in Washington, DC, DC, DC in the world, in Washington, in Washington.

“We are trying to find a remedy for this disease as soon as possible. It is therefore a model that brings together the best minds in the field,” said Fernando. “MBI is a question of collaboration and synergy. Scientists, to be funded by us, they have to work in a group.”

The MBI has brought more than a dozen laboratories around the world, which Fernando attributes to the speed at which progress has been made. (Graciousness of Fernando Goldsztein)

The initiative has brought together more than a dozen laboratories from around the world.

“By each having each piece of the puzzle, we were able to move very quickly and get very interesting results,” said Fernando.

Since Fox spoke for the last time with MBI, the group has helped accelerate at least two clinical trials at Florida University for Médulloblastoma and several other studies are underway.

“We have much more in our pipeline,” said Fernando. “We are delighted with these results.”

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In a clinical trial funded by MBI, scientists program the white blood cells of patients to search and destroy tumor cells. The results were promising and a participant’s cancer was almost eliminated.

In a distinct study always tested on mice, scientists at the University of Florida are looking for an early vaccine based on experimental mRNA. The study could lead to a universal plan that helps relaunch a patient’s immune system when fighting cancer.

Scientists of a clinical trial funded by the MBI program white blood cells to search and destroy cancer cells. (istock)

100% of donations given to MBI will support research and clinical trials to help children like Frederico. Fernando says that his son is doing well thanks to a large part of the new research carried out.

“It is an aberrant value, but we know that this type of tumor returns, so it flows against time. And that is why we move quickly to save it and save thousands of other children,” said Fernando.

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You can know more or make a donation to the Médulloblastome initiative https://mbinitiative.org/.